Monday, 15 July 2013

Online Shop Now Open!

Visit our online shop where you can now buy the transcript of the 2013 Patients' Day plus books, guides and great gift ideas.

Click here to start shopping

Thursday, 23 May 2013

Audio recording of National Patients' Day 2013

Thanks to all the lovely people who attended our Patients' Day - it was the busiest ever and, from the great feedback we received, everyone seems to have found it very useful. We know that not everyone can attend for various reasons so we have produced an audio recording of the day so you don't miss out - please feel free to share this if you think it could help anyone else:

http://youtu.be/7dKM-DjQIuo

Wednesday, 20 March 2013

Attend our national Patients' Day

We are delighted to invite you to our national Patients' Day being held on the afternoon of 14th May 2014 at St Thomas' Hospital.  Tickets cost £20 for HSF charity members and £40 for non members.

Tuesday, 19 March 2013

HSF's New Wesbite Goes Live

We are pleased to launch the new website for the Hughes Syndrome Foundation which can found at: www.hughes-syndrome.org

This website gives easier access to information for patients and hopes to improve their everyday life.

The Hughes Syndrome Foundation would like to thank the National Lottery whose funding made this possible.