APS Support UK News

Research has been published looking at the controversy over negative antiphospholipid antibody results in people who have been diagnosed with primary APS at an earlier stage. The authors of this paper looked at patients who had clearly been positive for the blood tests and had a diagnosis of APS, but whose subsequent tests had been negative. The study suggest that, in primary APS, persistent negative antiphospholipid antibody profile is not an indication to interrupt oral anticoagulant therapy. https://cancerologyoncologysfakianakis.wordpress.com/2017/02/13/antiphospholipid-antibodies-disappearance-in-primary-antiphospholipid-syndrome-thrombosis-recurrence/ 

Thank you to the two anonymous (so far) people who nominated APS Support UK as their chosen charity when they volunteered with My Cause UK at the Boomtown Fair last summer, earning us a donation of £100. My Cause provides unique volunteering opportunities at music festivals and events across the UK, allowing volunteers to raise funds for any charity they choose in return for their time and effort. In return for the time that a volunteer gives them, they make a donation on their b ehalf to their chosen charity. So, if you're a festival go-oer and want to get involved, please have a look at their website: http://mycauseuk.com/charity/aps-support-uk/

Thanks to all the patients who have recommended their APS doctors to us and allowed us to produce the UK Specialists Directory.  We have maintained this unique directory for over four years now and, thanks to information sharing, it has helped many APS patients finally see a doctor who understands their condition. We have just added over eight new doctors this year alone and now have a list of almost 130 throughout the UK. Please do let us know if your APS specialist is missing from the list and thanks again for making this possible.   http://www.aps-support.org.uk/…/specialists-in-your-area.php